I have epilepsy, and a few rare genetic disorders - there wasn’t much of a healthy community for them on Reddit, especially my weirder shit, but I would love to see at least Epilepsy/Neurodegenerative/connective tissue disorder communities have a bigger presence. A few exist, but don’t have posts, etc. My spouse has encouraged me to be the one to post, but I’m afraid of screaming into the void, just yet.
ED? I’ll post if you make it, but I have a super mild form. Honestly it feels like a positive thing 95% of the time, so I wouldn’t want to, like, humble brag?
yessss I miss the disability community and all the smaller subs where you could talk to other people about very rare/specific medical topics. Time to go search for the EDS gang on lemmy, or maybe do some void screaming if I can build up the nerve (・_・;)
I have epilepsy, and a few rare genetic disorders - there wasn’t much of a healthy community for them on Reddit, especially my weirder shit, but I would love to see at least Epilepsy/Neurodegenerative/connective tissue disorder communities have a bigger presence. A few exist, but don’t have posts, etc. My spouse has encouraged me to be the one to post, but I’m afraid of screaming into the void, just yet.
I think you’d have plenty of people join an epilepsy community as it’s fairly common.
ED? I’ll post if you make it, but I have a super mild form. Honestly it feels like a positive thing 95% of the time, so I wouldn’t want to, like, humble brag?
yessss I miss the disability community and all the smaller subs where you could talk to other people about very rare/specific medical topics. Time to go search for the EDS gang on lemmy, or maybe do some void screaming if I can build up the nerve (・_・;)