• Shelbyeileen@lemmy.world
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    6 days ago

    I got sterilized because I have a painful, degenerative, genetic condition (with no cure), that I feel is too cruel to pass on. I won’t risk letting a child be born with this syndrome, so I made the choice so I never have to deal with getting pregnant. If I ever want a kid, I’ll adopt. (Doubtful. I can barely take care of myself like this)

    Every day hurts, there’s LOTS of days I wish I was aborted but I look at my rescue dog (who had been my service dog for 9 years now) and everything is OK. He was thrown away twice before I came along and his first owner kicked his teeth in. If I wasn’t here, who knows what could have happened to him.

    Pet Tax. You can see where his face was kicked, but nothing stops him from smiling

    • lka1988@lemmy.dbzer0.com
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      6 days ago

      That dog is adorable, I don’t know what would possess someone to inflict that kind of torture on him… Also, I love the fact that he’s got a Master Sword strapped to him

  • greencactus@lemmy.world
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    7 days ago

    I would urge people to be careful how much we think disabled people (might) suffer. My mom is colorblind (she sees the whole world in shades of white or black), and her vision strength is 5% or lower. She is definitely disabled and receives a pension for not being able to work. Still, she managed to build up some form of existence: she managed to start an education and became a masseuse, and she gave birth to me and my brother. If my grandma would’ve known that my mom will not be able to live on her own, she maybe wouldn’t have proceeded with the pregnancy. Then I wouldn’t be here either.

    My conclusion: what do you define by disability? If it is a chronic disease which means your child will be in pain their whole life, it is very different than having a child who isn’t able to “function” normally, but isn’t inherently in pain. Over my mom I met a lot of other disabled people, and most of them have built up an existence and lead a life. My mom wouldn’t agree that she is forced to suffer her whole life.

    No one is forced to bear out a child. You are not morally responsible to bear out a child, in my opinion. But we shouldn’t assume we know how this person will grow and develop during their lives.

  • deadcatbounce@reddthat.com
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    7 days ago

    Let’s be real. The disabled child doesn’t always ‘suffer’; it’s well known and directly observable that Downs children and adults are the happiest people on the planet bar none, for example.

    This is about whether you can cope with a disabled child but you’re too weak to write that; you put it on the child. The child’s problem.

    That fact that you’re writing that shows you shouldn’t have a child at all. A child doesn’t need weak parents, parents that will not go to bat for them and is likely to blame the child for whatever fate befalls their parent.

    I know exactly what weak pathetic parents are like. I wish you had been direct: as if you had a backbone.

  • fine_sandy_bottom@discuss.tchncs.de
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    7 days ago

    I dislike the use of the term “wrong” in this case immensely.

    Everyone ought to be able to decide what to do with their own body, free from judgement. That includes whether to grow a fetus, and the decision making process is completely irrelevant.

    It’s wrong to opine what’s right and wrong regarding someone else’s bodily autonomy.

    If the question was, “if you were pregnant and you were told your child was going to be severely disabled, would you seek an abortion” the answer is “most likely”.

  • NeoNachtwaechter@lemmy.world
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    8 days ago

    Please be more specific about the actions that are to decide, when you say generally “to not have a disabled child”. IMMHO the whole ethical discussion, or any ethical answers are not possible without being completely clear on these specifics.

    • Like the wind...@sh.itjust.worksOP
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      8 days ago

      I have a higher chance of birthing a developmentally disabled child if I actually do get pregnant. Is it wrong to be 100% against birthing my own child solely because of this.? I was misdiagnosed and was in an aba institution for 10 years, and dehumanized and alienated by family the whole time. When I got to a real high school, I was treated like an infant or a wild bear, nothing in between. I wholeheartedly believe that regardless of whatever I accomplish in my life, I would have been much better off never born, euthanized, or murdered.

      I don’t want to force this experience on anyone else if I can prevent it from happening. It’s not just the abuse in the aba institutions but treatment literally everywhere. In high school everyone had brand name clothes, apple technology, brand headphones, etc. No one cared. I had off brand clothes, cheap headphones, a Microsoft Surface and a Galaxy phone, and was treated like a rich scumbag, like I was Brian Thompson’s privileged daughter who had everything because her dad made everyone suffer. Literally not having brand name clothes was status against everyone else. I couldn’t afford them even if I did want to wear clothes advertising the store it came from. I never understood the appeal of that. But everyone saw somebody below them with some nice things, and even worse, preferences.

      Being a joke to the people who “love” you, having all your “friends” be people school staff begged to talk to you so you don’t kill someone, and having the same disorder that made you less of a human be the reason why you accomplished something mundane like passing a class with a 60 grade is just not a life worth living. Watching everyone else get to be real humans with real happiness, real hobbies and interests, and real personalities while you need to hide everything about yourself is not a life worth living. There’s just no reason to live on the wrong side of society. I wish my mother had just aborted me when there were signs I wasn’t going to make it. I’m not making the same mistake.

      • SkavarSharraddas@gehirneimer.de
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        8 days ago

        Your stance sounds like “too many people are assholes, this world is not worth living in” - arguably true, on the other hand, that gives the assholes all the power.

        • Like the wind...@sh.itjust.worksOP
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          8 days ago

          It’s an issue when the assholes are authority who literally raise you to be a failure. Obeying them makes you grow into a failure, and actually trying to grow is rebellion. And doing anything out of line, like using a gift card app to buy body wash when your parents refused to buy it for you, and showering, can get you put in a home for the rest of your life. Obviously I wouldn’t treat my child that way but they’ll need to choose between listening to their parents or listening to their teachers, the latter deliberately trying to make my child a failure so they can “know their place”.

        • CoffeeJunkie@lemmy.cafe
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          7 days ago

          Upvoted, also torn. Because even if this person or any individual wants to “stand against” assholes so “they don’t give them all the power”, effects will probably be minimal but the effort expended won’t be.

          I had some people giving me shit when I was in my young to mid-twenties. My dad’s advice: “Prove them wrong! Do x, do y, do z…” So…do all these things & live your life…to gain the approval of assholes, people who don’t really matter, people you don’t like? Nah. I’m going to do what I want.

          I know my personal experience doesn’t map perfectly on your conversation & points, but idk I think it’s similar. I think they have the power because they’re assholes, because they seek out power over others. Perhaps the best course of action is to ignore the assholes & not give them any more of your time, consideration than is absolutely necessary. Live your life the way you want to live it.

          Back to the main convo, idk. Personally, I find myself becoming more anti-natal. Have strong prevention game. An ounce of prevention is worth a pound of cure.

      • lurklurk@lemmy.world
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        8 days ago

        You have every right to not have kids. This reason is as valid as any.

        I’m sorry for your experience. I hope you’re doing better now

    • MelonYellow@lemmy.ca
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      8 days ago

      Yeah simply put - if I was the kid and I was able to comprehend being born at a permanent disadvantage, and I knew you had a choice in the matter… Hell yeah I’d be mad! Life is hard as it is

    • Rivalarrival@lemmy.today
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      7 days ago

      If your decision to abort is because the fetus will be a redhead, that’s “planned breeding”, not “eugenics”.

      The sine qua non of eugenics is a state mandate.

    • sunzu2@thebrainbin.org
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      8 days ago

      It is a person choice… “People” can get fuxked unless you are going to provide generous social safety net for a person to have ability to take care of such a child.

      Most working pedons can barely afford to wipe their own ass under this clown regime.

      Forcing yourself into poverty to satisfy some idiots feels is a fool’s arrand.

    • 3 dogs in a trenchcoat@slrpnk.net
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      7 days ago

      this is kind of ridiculous. do you realize how broad a term “disability” is? my parents have poor eyesight and need glasses. are they bad people for having kids when they knew we would inherit that?

  • sepiroth154@feddit.nl
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    8 days ago

    It depends. Is it wrong to abort a child with mild autism? (Assuming we could test for that)

    I’d say very much so. (assuming the child was otherwise wanted)

    But if it’s a disability where they (or people around them) were to live a life full of (mental) pain it would be a different story.

    So there is a line somewhere. But drawing a line between “desirables” and “undesirables” is frowned upon.

  • cRazi_man@lemm.ee
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    8 days ago

    That’s an incredibly complicated question with no single answer. If you’re looking to delve into this area then I’d say your interest will take you to reading phiosophy and medical ethics. If you are interested, then this is one of the best podcasts for medical ethics that I’ve found.

    As for your question, it’s probably best broken down to at least 2 initial questions:

    • Who decides what is “disability”?

    Very poor eyesight or cataracts used to be debilitating. Now anyone with access to basic healthcare would not even consider mentioning those as health problems. Downs syndrome used to be a teerrible diagnosis, now people with Downs syndrome mostly have a good quality of life. Many deaf people would not consider themselves disabled at all. Does it matter if someone is in a wheelchair, and is happy, fulfilled and contributing to society? Is losing a part of a finger a disability? How about losing a whole finger, or 3 fingers?

    • Who decides what is “suffering”?

    Plenty of fully able people are suffering. Plenty of medically limited people are perfectly happy and fulfilled. A person who has the maximum intellectual intellectual capacity of a 2 year old and no ability to communicate, but who smiles and laughs and claps could be said to be happy and not suffering. If a pregnancy scan shows a baby is going to be born without a foot, can the parents or doctors decide that’s a life not worth living? Even if someone is suffering, how much suffering is too much? If a person is in endless pain, severely limited function and unable to survive off a ventilator; then can parents or doctors decide that’s not enough suffering to end their life?

    There are loads more questions that will come up. How do you even find out your child is going to be disabled? Is it reasonable for everyone to ask for genetic tests before the baby is born, and abort if they don’t like the answer? Just because we have an ability to test or treat a condition, doesn’t mean we should use those tools without considering why. Your question also is particularly about having a child, and you need to seperate the suffering of the child from the inconvenience, resources and suffering of the parents/family.

    This is a very deep rabbit hole to go down and it ends up in all sorts of places (eugenics, euthenasia, abortion, resource allocation, the value of a life, etc).

    • lukewarm_ozone@lemmy.today
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      8 days ago

      This is a great comment. I’ll add that anyone thinking about disability ethics should read Two Arms and a Head, lest they start taking too seriously the idea that disabilities have no effect on quality of life.

    • Rivalarrival@lemmy.today
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      7 days ago

      Alternatively, it’s an incredibly simple question, with an incredibly simple answer:

      It’s your business, not mine. Do what you want for the reasons you want.

  • Rivalarrival@lemmy.today
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    7 days ago

    I’ve said this many, many times: If abortion is a viable option, it is the only option worthy of consideration.

  • jet@hackertalks.com
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    8 days ago

    In the context of DNA screening of embryo - I think its ethical to give your children the best chance at a successful and enjoyable life. If there was a major burden identified it would be reasonable to not implant that embryo.

    We do things to maximize the changes and outcomes of children, we don’t smoke during pregnancy, we avoid drugs, we avoid alcohol, all of these actions are in the same thrust of improving the child’s life.

    That is just my personal take, there are other religions and philosophies so this is a area of rich debate.

  • sunbrrnslapper@lemmy.world
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    8 days ago

    I don’t think so. I have 2 disabled kiddos and they aren’t suffering, but they don’t have it as easy as their peers - which can be heartbreaking to watch.